Our Warriors

Meet Our Warriors & Learn Their Stories

  • Molly's Story

    Molly’s story starts long before she was even born. Our plans for a second child were put on hold by the coronavirus pandemic in early 2020 and a very early miscarriage later that year. When we saw the “pregnant” result on the test in November 2020, it had been a bit of time coming. Needless to say, Molly was very much wanted and loved for a long time before she even was here and will continue to be loved despite her not physically being here.

  • Evan's Story

    Evan’s story starts at his 20 week anatomy scan.  On December 28, 2020, I went for my 20 week anatomy scan during COVID - alone.   After what felt like forever, the ultrasound technician said she had to get the doctor and not to get dressed.  The doctor came in, re-scanned and told me to get dressed.  Walking to his office, he told me to call my husband so he could talk to both of us.  I knew something was terribly wrong but the words Congenital Diaphragmatic Hernia had never crossed my mind.  Those three words would forever change our lives.

  • Tilly's Story

    Tilly had a thing for the day after holidays. On the day after Valentine's Day, we got Tilly’s CDH diagnosis. She died 4 years later, two days after her 4th birthday and the day after Father’s Day. But she did everything in her short life on Tilly time.